Patient stories

Allys was diagnosed with a brain tumour shortly after the birth of her first child.

Dr Santosh Poonnoose: My neurosurgeon and life saver. Without him I believe I wouldn’t be here typing these words

Amy is a ruptured aneurysm and SAH survivor.

Bethwyn owes her life to the skills of her Neurosurgeons and her faith. Incredibly, she has survived six aneurysms between 1967 - 2019.

Casandra’s husband Denis Bodo suffered from a rare genetic disease, and not long after his death, she suffered a spinal cord injury, a traumatic brain injury and is now living with Parkinson’s Disease.

Casey was diagnosed with an epidermoid brain tumour the size of an egg on her brain stem in 2020

Cecilia was diagnosed with an oligodendroglioma brain tumour in her left frontal lobe in 2014 which was operated on successfully. In 2020 she suffered a seizure while shopping, after which it was found that her brain tumour had changed from an oligodendroglioma to an anaplastic astrocytoma, grade 3.

ABC News Breakfast Reporter Charles Brice shares his story after a motorbike accident at just 19 left him a quadriplegic.

Chelsea was diagnosed with a brain tumour in 2013 when she was 27 years old and had just started a family.

Strong Enough To Live

Brave for Dave - Never Out of the Fight

Di is a cerebral aneurysm survivor.

At just 15 years old Ella's life completely changed when she was diagnosed with both a dysembryoplastic neuroepithelial (DNET) brain tumour and Chiari Malformation.

Katrina Dight Martin’s son Finn was diagnosed with a Tethered Spinal Cord (TSC) at only a few days old. Here she shares Finn’s story.

In 2018, Lauren’s life changed in an instant when she suffered a traumatic brain injury after an accidental fall while helping a student down from a piece of play equipment.

At 6 weeks old, it was discovered that Lili had enlarged arachnoid cysts - a very rare disorder.

Lucinda was diagnosed with a Hemangioblastoma in 2015.

Principal Physiotherapist Patrick shares his story after being diagnosed with a 2.1cm tumour that grew off his 8th cranial nerve - a 'Vestibular Schwanomma'

Rosel has written the story of her brain tumour journey here. Please read her story below.

Kristen was diagnosed with a pilocytic astrocytoma one month before she turned 21 years old and went on to have 4 brain surgeries.

Matt was diagnosed with a grade 4 glioblastoma in 2019 and went on to have surgery on his 40th birthday. Given a prognosis of 12-18 months to live, Matt shares his story on his 43rd birthday, 3 years after his original operation.

Sally has been seeing a neurosurgeon since she was born – as she was born with fluid on the brain (Hydrocephalus). Unfortunately, this association has continued, due her brain tumour diagnosis in 2016.

Tyler Fuller was just 19 years old when he suffered a terrible accident after falling on to the rocks at Middleton on New Years Day 2020.

Rose was diagnosed with a stage 3 anaplastic astrocytoma in June 2021